DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneAMYLOIDOSISvoice.com | ||
To unsubscribe from these emails, click here |
Trusted Resources: Community Center
Online support, community stories, financial assistance
How to Cope With and Survive a Terrible, Incurable, Fatal Disease
I am writing to tell my story and help others. Everybody is different, but a terrible, incurable, fatal disease equalizes us all. There is wisdom and understanding that comes through adversity and suffering. It is much easier to read about than experience, but knowledge can be passed on and I can provide some counsel and comfort for those in similar situations.
This is particularly true of your own life. There are a lot of really terrible diseases out there, and mine was a very bad one that came out of the blue. My terrible surprise came when I was 58, vigorous and in good health, working out almost every day.
Related Content
-
videos & visualsDoctors Making Progress In Treating Amyloidosis – CBS Pittsburghhttps://pittsburgh.cbslocal.com/2019/03/...
-
people & placesMackenzie’s MissionWhy Mackenzie’s Mission As a result o...
-
educationMarked Progress in AL Amyloidosis Survival: A 40-Year Longitudinal Natural History StudyThe recent decades have ushered in consi...
-
people & placesAction for AmyloidosisAction for Amyloidosis is an all-volunte...
-
educationChoosing Not to Continue Your Career After hATTR Amyloidosis DiagnosisDeciding to leave your job following you...
-
news & meetingsNew, More Accessible Staging System Developed to Predict Survival for Patients With Light Chain AmyloidosisA new staging system developed with a mo...
-
educationIndependent Living When You Have FAPFinding out you have a rare genetic dise...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.