Google
Trusted Resources: Community Center
Online support, community stories, financial assistance
One Family’s Journey to Find a Cure for Amyloidosis
For three years Aileen Watt and her husband Alex travelled over 200 miles every week from the north west of England to the Royal Free Hospital in Hampstead, so he could receive specialist life-prolonging treatment for the rare condition, amyloidosis.
In January of this year Alex sadly died at the age of 69, but his family say they will always be grateful for the treatment he received at the hospital, enabling him to live long enough to meet his three grandchildren.
Now they want to talk about the condition to raise awareness about the ground-breaking research work taking place. The National Amyloidosis Centre, based at the Royal Free Hospital, has been at the cutting edge of treatment and research into all aspects of the condition since 1999. It was established by Professor Sir Mark Pepys, the first UK physician specializing in amyloidosis.
Source: https://www.royalfree.nhs.uk/news-media/news/one-familys-journey-to-find-a-cure-for-amyloidosis/
myBinderRelated Content
-
A Journey Through a Stem Cell Transplant for Amyloidosis at Boston Medical Centerhttps://www.youtube.com/watch?v=b-5VWVKn...
-
Amyloidosis, A Tricky Diagnosis, Can Be Traced to Vietnam and Exposure to Agent OrangeMarch being Amyloidosis Awareness Month,...
-
Dylan’s Amyloidosis Storyhttps://www.youtube.com/watch?v=G3Ec14rA...
-
A Video on Transplant Games by Claire Montourhttps://vimeo.com/305409559...
-
Stanford Amyloid Center: Kevin Anderson’s Storyhttps://www.youtube.com/watch?v=rfl0xWzg...
-
Matt Millen Needed a Heart Transplanthttps://vimeo.com/320786758...
-
Hereditary Amyloidosis CanadaThe Hereditary Amyloidosis Canada (HAC) ...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
