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Trusted Resources: Community Center
Online support, community stories, financial assistance
My AL Story: Danielle Morency
My condition worsened until the beginning of August 2019. My legs were completely swollen; my ankles had become non-existent because they were so swollen. I started having what I thought was an allergy or hives on my right leg. It was red, swollen, and itchy. My niece, who is a nurse at the Montreal Heart Institute visited me and did not like at all what she was seeing.
After all the exams I have taken, a careful study of my file has shown the possibility of infiltrative heart disease. A heart biopsy was taken and it was then that the diagnosis was made: light chain amyloidosis with cardiac involvement. Luckily, it was the only organ affected.
Source: https://amyloidosis.org/node/94
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