DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
rareLife solutions 606 Post Road East #397 Westport, CT 06880 |
||
You are receiving this because you have an account on www.oneAMYLOIDOSISvoice.com | ||
To unsubscribe from these emails, click here |
Trusted Resources: Community Center
Online support, community stories, financial assistance
Amyloidosis Treatment Gives Ricardo a New Life
When Ricardo rides his stationary bike he leaves the memory of heart failure further and further behind. After he was diagnosed with amyloidosis, specialists at Newark Beth Israel Medical Center were able to arrest the production of amyloid protein that destroyed his heart and perform a heart transplant.
Ricardo had felt his life waning for two years but doctors could not find the problem. “I used to walk a mile and a half to work but suddenly I was so exhausted that just taking a shower was a mission. None of the medications helped me,” he remembers.
Primary AL amyloidosis is a rare blood disorder that results in production of abnormal protein (amyloid) that is deposited as fibers on organs such as the heart, kidneys, nerves and intestines. Because the condition is uncommon – only about 3,000 Americans are diagnosed each year. Most physicians have little experience diagnosing or treating the condition.
Share
myBinder
Related Content
-
educationHow Neuropathy Patients Can Cope With a DiagnosisThe presence of peripheral neuropathy sy...
-
news & meetingsMackenzie’s Mission: ResourcesKnowing where to go for information when...
-
videos & visualsJessica Edwards: Coping With Amyloidosis – ASG Webinar 6/6https://www.youtube.com/watch?v=CkBwTpXh...
-
educationHow Can I Cope With Diarrhoea?Patients should tell the medical staff a...
-
videos & visualsA Journey Through a Stem Cell Transplant for Amyloidosis at Boston Medical Centerhttps://www.youtube.com/watch?v=b-5VWVKn...
-
news & meetingsFor Matt Millen, a New Heart Challenges Him to Find a New Life’s PurposeThere’s a hill behind Matt Millen’s ...
-
people & placesJon A. Kobashigawa, MDJon A. Kobashigawa is Associate Director...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.