Google
Trusted Resources: Community Center
Online support, community stories, financial assistance
Pat Jordan – Amyloidosis Patient Story
When Pat Jordan, 65, was officially diagnosed with hereditary ATTR (hATTR) amyloidosis in May 2016, her first thought was, “Well, now I know how I’m going to die.” Her second response, however, was one of relief, because the diagnosis finally put a name to the various medical problems she had been experiencing over the past 20 years.
There are many forms of amyloidosis, some of which are similar to blood cancers. hATTR amyloidosis is not cancer, but it is a debilitating, life-threatening disorder caused by a gene mutation that affects transthyretin (TTR), a protein made primarily in the liver that helps carry substances like thyroid hormone and vitamin A throughout the body. hATTR amyloidosis can affect the peripheral nervous system, the autonomic nervous system and the heart, and because there is currently no cure, it’s considered a terminal disease.
myBinderRelated Content
-
‘Care and Prevent’: Rationale for Investigating Skin and Soft Tissue Infections and AA Amyloidosis Among People ...Background: Skin and soft tissue infect...
-
Chip Miller Amyloidosis FoundationChip Miller was known worldwide for his ...
-
Patrick Hagen, MDPatrick Hagen is an Assistant Professo...
-
Multimodality Imaging of Cardiac Sarcoidosis and AmyloidosisThis live webinar will examine multimoda...
-
Michael Polydefkis, MDDr. Michael Polydefkis is Director of Cu...
-
Jonathan L. Kaufman, MDDr. Jonathan Kaufman is the Medical Dire...
-
AL Amyloidosis: From Molecular Mechanisms to Targeted TherapiesSystemic amyloidosis is caused by misfol...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
