Google
Trusted Resources: Community Center
Online support, community stories, financial assistance
AKCEA CONNECT: Support for the Ionis Drug Tegsedi
AKCEA CONNECT is here to assist and help you feel more empowered in your healthcare. Our support program is staffed by a team of dedicated Nurse Case Managers who understand the challenges that come along with living with a rare disease. Here are just a few ways we can help:
Knowledge:
Your Nurse Case Manager can provide educational materials for you and your healthcare team to help with day-to-day disease management.
Access:
Your Nurse Case Manager can assess your insurance coverage, answer funding questions, and research assistance options.
Empowerment:
Your Nurse Case Manager can help you connect with people and resources in the rare disease community so that you don’t feel isolated or alone.
myBinderRelated Content
-
Matt Millen Receives a Christmas Eve Heart TransplantMatt Millen, the four-time Super Bowl ch...
-
ASNC/AHA/ASE/EANM/HFSA/ISA/SCMR/SNMMI Expert Consensus Recommendations for Multimodality Imaging in Cardiac Amyloido...Cardiac amyloidosis is emerging as an un...
-
How to Be an Effective Advocate – ASG Webinar: Section 4/4https://www.youtube.com/watch?v=Pd6DVKeM...
-
Diagnosis and Treatment of Amyloidosis – Dr. Suzanne Lentzschhttps://www.youtube.com/watch?v=vH9sV9A8...
-
John A. Lust, MD, PhDJohn A. Lust is a hematologist/Internist...
-
Janice F. Wiesman, MD, FAAN (Remembering)Dr. Janice F. Wiesman, MD, FAAN was a Cl...
-
Eidos Clinical Trial Update – ASG Webinar 5/11https://www.youtube.com/watch?v=K2TmwAfu...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
