Google
Trusted Resources: News & Meetings
Latest announcements and gatherings
A vision toward a more holistic approach to care in hereditary ATTR amyloidosis
Hereditary transthyretin (hATTR) amyloidosis, also known as variant ATTR (ATTRv) amyloidosis, is a rare disease affecting about 50,000 people worldwide. It’s caused by a change (called a variant or mutation) in the gene which contains the instructions (or code) for making a protein called transthyretin (TTR). All humans have TTR, its job is to transport molecules around the body via the bloodstream. But in people who carry the variant or mutated gene, the TTR protein is abnormal and builds up as amyloid deposits in the organs, disrupting normal function and leading eventually to life-threatening organ failure. What’s more, the disease can be passed down through families, sometimes with high frequency, meaning that generations of families are affected
myBinderRelated Content
-
Dr. Wechalekar’s Interview on Burden of Diseasehttps://www.youtube.com/watch?v=Q-aaIPMa...
-
Efficacy of Chemotherapies and Stem Cell Transplantation for Systemic AL Amyloidosis: A Network Meta-AnalysisBackground/Aims: The present Bayesian n...
-
Clinical Profile and Treatment Outcome of Older (>75 years) Patients With Systemic AL AmyloidosisSystemic AL amyloidosis, a disease with ...
-
Caregiver Burnout: ResourcesIf you are already suffering from stress...
-
Inotersen: An Exciting Prospect for hATTR Amyloidosis TreatmentA new hereditary ATTR (hATTR) amyloidosi...
-
Randall Starling, MD, MPHRandall C. Starling, MD, MPH, FACC, FESC...
-
New Miami Hurricanes DL Coach Todd Stroud has Overcome Life Threatening IllnessNew Miami Hurricanes defensive line coac...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Community Key Collaborator
Support for this landing page is provided by an independent education grant from
Translation of this platform made possible through an independent education grant from
Powered by
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
