Google
Trusted Resources: People & Places
Healthcare providers, researchers, and advocates
Action for Amyloidosis is an all-volunteer non-profit organization that benefits patients, families and the medical community, and others affected by this rare disease with energetic programs of support, education, and fundraising. Action for Amyloidosis will intensify the momentum already generated by existing groups battling the disease.
In response to the enormous need for awareness, and in honor of the vibrant life and work of Anne Robinson (1949-2009), beloved family member, friend, colleague, and prominent child advocate, the group Action for Amyloidosis announced its formation in Colorado in October 2009. Anne’s dedication to the children of Colorado, and her courageous fight while battling amyloidosis, inspired her loved ones to raise awareness of this insidious disease and support other amyloidosis patients and their families.
In three short years, this non-profit, 100% volunteer run organization has raised awareness across the country, developed a Volunteer Services Program and Patient Financial Aid Program for those suffering from amyloidosis.
myBinderRelated Content
-
Amyloidosis Support Groups (ASG) Launches new Amyloidosis Patient RegistryThe Amyloidosis Patient Registry is a ne...
-
Amyloidosis FoundationThe Amyloidosis Foundation began with th...
-
Methodist Blood and Marrow Transplant CenterThe Methodist Blood and Marrow Transplan...
-
Amyloidosis: Questions to Ask the DoctorTalking often with the doctor is importa...
-
Bill’s Race to Beat AmyloidHelp raise money and awareness for a rar...
-
Utah Amyloidosis SymposiumOn behalf of the Organizing Committee, i...
-
Transthyretin Amyloidosis (ATTR): Rare Disease Prevalent in the Portuguese Communityhttps://www.oneamyloidosisvoice.com/wp-c...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
