rarePoll center | oneAMYLOIDOSISvoice
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  • OPTIONAL:vote now
  • How has amyloidosis affected your marriage?vote now
  • How as Amyloidosis affected your marriage?vote now
  • Before you were diagnosed with ATTRwt, were you misdiagnosed with another condition? vote now
  • What concerns would you have about receiving gene therapy / gene editing? (select all that apply)vote now
  • Please select all statements below that seem true to you. (select all that apply)vote now
  • Do you understand how gene therapy / gene editing works?vote now
  • What is your impression of gene therapy / gene editing?vote now
  • Have you tried to help spread awareness of amyloidosis?vote now
  • Do you belong to any kind of support group for amyloidosis, such as Amyloidosis Support Groups?vote now
  • Have you told earlier medical providers that you were diagnosed with amyloidosis?vote now
  • What are the major symptoms you deal with day-to-day? (check all that apply)vote now
  • Are you able to care for yourself or do you require assistance of a caregiver?vote now
  • How happy are you with your level of medical care?vote now
  • Would you consider participating in a clinical trial in the future if you met the criteria?vote now
  • Have you ever attempted to participate in a clinical trial but did not qualify?vote now
  • Have you ever participated in a clinical trial?vote now
  • If you have been diagnosed with Amyloidosis, what type were you diagnosed with?vote now
  • If you have been diagnosed with Amyloidosis, how old were you when you received your diagnosis?vote now
  • How much time do you spend per week researching, discussing, participating in social media, etc., related to Amyloidosis?vote now
  • Who is the person who has helped you most through your Amyloidosis journey?vote now
  • Has Amyloidosis ever interfered with your work life?vote now
  • Has Amyloidosis ever interfered in your personal relationships?vote now
  • Do you feel that managing your Amyloidosis experience has made you a stronger person?vote now
  • Do you think others outside of your close friends and family understand the challenges you face in your Amyloidosis journey?vote now
  • Have you ever felt guilty about some aspect of having Amyloidosis?vote now

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