How to Talk With Your Family About Your hATTR Amyloidosis Diagnosis? | oneAMYLOIDOSISvoice
×
Or register here
Global Search

Trusted Resources: Education

Scientific literature and patient education texts

Back to Education / Patient Education

How to Talk With Your Family About Your hATTR Amyloidosis Diagnosis?

key information

source: ChangehATTR

year: 2019

summary/abstract:

Talking to your family members about your hATTR amyloidosis diagnosis is an important first step in your disease journey. You can help your family members understand your specific symptoms as well as the treatment options available to you. It’s also important for them to know that hATTR amyloidosis is passed down through family members (genetically inherited) and that they might be affected by the disease. Planning ahead can help make the conversation easier for you. Find some tips below to help guide your discussion.
 
Decide who you want to tell, and when:
These conversations can be difficult, so it is important to have them when you are ready. There is no one “right” way to talk to your family members. You can:
 
  • Talk to one, trusted family member and ask him or her to have the conversation with others
  • Meet with family members individually to discuss diagnosis
  • Have a “family meeting” to discuss the diagnosis
  • For your “family meeting” consider having a non-family member, therapist or support group member to attend to provide guidance and support
  • Ask your healthcare team to be there for the conversation.
 
read more

Related Content

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close

Community Key Collaborator

Support for this landing page is provided by an independent education grant from

Translation of this platform made possible through an independent education grant from

© 2024 rareLife solutions Inc.

To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences.
More information

The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.

Close