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This was posted yesterday on the Canadian site. I’ve never read a more compelling description of what our lives are like. I think you will find this the most…

In 2002, my mom was diagnosed with familial cardiac amyloidosis and was given about 18 months to live. By God’s divine miracle (which I will explain in another post…

Cardiac transthyretin #amyloidosis (ATTR-CM) is a progressive and often fatal heart disease caused by misfolded #transthyretin buildup in the heart, with limited…

Is a PYP scan enough to diagnose #cardiac amyloid? Not by itself. Learn what to order, what to rule out, and how to identify hereditary #ATTR-CM sooner. Earn 1.0…

Hi! I'm new to this group. I recently joined because my dad was misdiagnosed at first but we now know he has cardiac amlodocus wild type TTR

Stay ahead of the curve in ATTR-CM management with evolving long-term datahttps://ow.ly/ZuxT50YQXB3This programme explores the relationship between early serum TTR…

ATTR-cardiac amyloidosis (ATTR-CM) is often underdiagnosed because it shares many symptoms with other forms of heart failure. My friend @howardhwhite knows this…

Living with cardiac amyloidosis can feel overwhelming but understanding it can change everything.In this E3 session, we’re bringing together lived experience and…

New research at UMMC is shedding light on a genetic variant that may help explain heart disease risk in African Americans. Learn how identifying the TTR gene…

Good evening I have to be tested for amyloidosis. They want to do a MRI but know that I’m terrified to get in, so that’s a no. My cardiologist said that he…