Community Center

Hey fam,Research is how we got the treatments we have today, and it’s how we’ll find better ones tomorrow.Even if joining a clinical trial isn’t right for you, it’s…

I'm posting on here on behalf of Mum, who has AL Amy (UK). Hoping to bring some hope to those with AL, and also get some feedback! Would love to hear your…

How did you do? Whether you knew all the answers or learned something new today, that’s what awareness is all about.The more we understand hereditary ATTR…

The TRITON-CM study is exploring an investigational medication for people living with ATTR amyloidosis to see if it could lower their number of urgent heart-related…

Cardiac amyloidosis is often mistaken for other heart conditions. The head of VCU Health Pauley Heart Center’s cardiac amyloidosis clinic shares early warning signs…

Cardiac amyloidosis is a serious heart condition that can be difficult to diagnose because its symptoms, such as shortness of breath, fatigue, and swelling, often…

Did you know?ATTR-cardiac amyloidosis (ATTR-CM) is a progressive condition that affects the heart. Many cases go undiagnosed, leading to serious complications…

I have AL Amyloidosis  - I wrote a long post, and it's on Substack  - it’s called “A Year Like No Other” - 365 Days living with an incurable, rare illness…

#MyelomaMondayAL amyloidosis is a rare condition closely related to myeloma, in which abnormal plasma cells produce proteins that build up in organs and tissues,…

Kristen Hsu, ARC’s Executive Director of Research, shared the latest updates on ATTR (transthyretin amyloidosis) clinical trials and what these developments mean…