Community Center

Join Fred Hutch Cancer Center and the Amyloidosis Support Group for a free educational event designed for patients and caregivers affected by AL (light chain) or…

Pfizer has announced a Competitive Fellowship Grant Program to support clinical training in transthyretin cardiac amyloidosis, also known as ATTR cardiac…

My husband was diagnosed with WT ATTR and stayed on Attruby.  Initially,  for the first 4 weeks he felt good,  but now he is having autonomic nervous…

Anonymous Survey For Those Diagnosed with Cardiac Amyloidosis (ATTR-CM) Along with AfibHave you been diagnosed with cardiac amyloidosis? If so, you are invited…

Update June 16th today Dad is getting his First Amvutra injection, any helpful information we are needing to know please advise?? He has an appt with the…

Watch Dr Esther González López and Prof Marianna Fontana discuss the ATTRibute-CM outpatient sub-study, examining the impact of worsening heart failure in patients…

Hereditary amyloidosis is not just a heart issue. It can show up first in the gut, nerves, muscles, or through genetic clues.That means GI docs, neurologists, rehab…

Transthyretin amyloidosis (ATTR) is a rapidly evolving disease with a rising prevalence and improving prognosis. With an increasing number of patients diagnosed…

I am being treated for wild type ATTR Amyloidosis with Vyndamax.  I'm exhausted all of the time.  Besides all of my other ailments is the ATTR  the…