Mar 15, 2025
The demands of caregiving can be exhausting and overwhelming. But there are steps you can take to rein in stress and regain a sense of balance, joy, and hope in…
Mar 12, 2025
Eating healthfully and having an active lifestyle can support healthy aging. Use the resources below to learn about different patterns of healthy eating and ways to…
Mar 12, 2025
Through my roles as a caregiver for my late husband, Aubrey, and as an amyloidosis patient advocate, I’ve been transformed. I once assumed that my life would…
Mar 07, 2025
The pandemic’s ongoing toll has prompted more people to consider caring for an aging parent, partner, or spouse at home. But with someone turning 65 every eight…
Mar 04, 2025
Most patients have families that are providing some level of care and support. In the case of older adults and people with chronic disabilities of all ages, this “…
Feb 28, 2025
Any parent can relate to the stress of having a sick child. But when a child is diagnosed with a rare disease, it flips a family’s world upside down and sets them…
Feb 27, 2025
Rare Disease Day Summit highlights myositis and the 7000 other rare diseases affecting one in ten AmericansCOLUMBIA, MD, UNITED STATES, February 27, 2025 /…
Feb 26, 2025
Understanding Caregiver ResponsibilitiesEmbarking on the journey of becoming a caregiver can be a complex process, particularly when it comes to live-in caregivers…
Feb 19, 2025
Dr. Sarah Cuddy, cardiologist at Brigham and Women’s Hospital, explored the basics of amyloidosis. She presented an introduction to amyloidosis, the different types…
Feb 14, 2025
A CHEF diagnosed with incurable cancer has vowed to run her 600th marathon by the summer.Doctors diagnosed Brenda O’Keeffe, 48, from Co Cavan, with a rare and…