Community Center

Caregiving for a person with ATTR-CM can be a rewarding and fulfilling experience. It can also be emotional, stressful, and challenging. Here are a few things to…

My amyloid condition has seriously affected my heart's function. So I am in the hospital now, in the middle of my fifth month.I am at the University of Washington…

Switching cardiologists or amyloidosis specialists can feel daunting, but sometimes it’s the next right step when you’re living with ATTR-CM and not feeling heard,…

Early recognition can make a difference. ATTR-CM (a type of amyloidosis) can affect the heart — especially in older adults and some Black families. Awareness saves…

Excellent article on the latest guidelines for diagnosing AL amyloidosis!Key Insights on New ASH Guidelines for AL Amyloidosis, With Joselle Cook, MD

It all started in the spring of 2002, my awareness that is. We had left our home of 15 years in Seattle to settle for the next 20 years in Syracuse, NY. We were…

If you or a loved one are living with hereditary ATTR amyloidosis with cardiomyopathy (hATTR-CM), you are likely well-acquainted with the challenges of heart health…

I was diagnosed with wild-type ATTR-CM 11 months ago. Here is my story about the path that took me to my diagnosis.In the summer of 2021, I noticed a bump on my…

Amyloidosis is a word I wish I’d never had to learn. Between its many forms—like transthyretin cardiac amyloidosis (ATTR-CM), hereditary ATTR (hATTR), and AL…

Hello! My name is Christine. I’ve been married to my wonderful husband for 35 years, and we have two children, ages 33 and 31, who have not been tested. I’m a proud…