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It has been twelve years my father an olympic athlete was diagnosed with amyloidosis. Through the years he has had chemotherapy, dialysis, a stem cell transplant, a…

Patients, caregivers and loved ones with AL amyloidosis - If you do not answer the questions you will not be allowed to join. We have other groups on Facebook for…

Hi, I'm a bot that tweets the latest in amyloid research from PubMed. Creator: @AvinainderSingh Location: Boston, MA

My name is Jason Conway and I am a husband, father, teacher, and coach. I am 48 years old and have lived a pretty normal, healthy life. I have always been active…

Valentine's Day 2013, we received a call from my husband's nephrologist. A week earlier we had no idea what a nephrologist was. And doctors don't typically call…

The ANDROMEDA trial is a trial that is extremely important for patients who have systemic light chain or AL-amyloidosis. I'd like to begin by thanking Janssen…

Back in 2015, I went to see my primary care manager (PCM) several times because of fatigue and feeling feverish (when I didn't have a fever). My muscles and bones…

There are times when those afflicted with amyloidosis need assistance - a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so…

Three years ago a dream came true. After years of trying, l was blessed to give birth to my son. Shortly after giving birth, I began to experience a series of…

ESPN's Jeremy Schaap was among those who received a text from Matt Millen on Dec. 23 that read, "It's on!" followed by a heart emoji. Millen, who had been…