UPCOMING SESSIONS in ET
Tue, Sep 29, 2026
5:00 – 6:00 AM Bangkok
Clinical Trials 101: How to Understand Phases, Data, and Study Results Taxiarchis Kourelis Click Here To Register
UPCOMING SESSIONS in ET
Tue, Sep 29, 2026 · 5:00 – 6:00 AM Bangkok
Clinical Trials 101: How to Understand Phases, Data, and Study Results
Taxiarchis Kourelis
Click Here To Register
View all sessions

hypermobilequeen

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May is also Ehlers-Danlos Syndromes Awareness Month, which makes sharing this story feel even more meaningful to me. 💜

A year ago, I was fighting for answers while trying to hold onto pieces of myself that illness was slowly taking away.

Today, I’m incredibly honored to share my story with the Amyloidosis Foundation to help raise awareness for hereditary ATTR amyloidosis (hATTR-PN), Ehlers-Danlos Syndrome, and the reality of living with invisible illness.