UPCOMING SESSIONS in ET
Wed, Apr 1, 2026
10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm Cath Jayasuriya Click To Register
UPCOMING SESSIONS in ET
Wed, Apr 1, 2026 · 10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath Jayasuriya
Click To Register
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Vermont Rare Disease Advisory Council Coalition Meeting

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EMPOWER CHANGE

Your Voice Matters in Building a Rare Disease Advisory Council

Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont.

  • Meet other rare disease community members in your state.
  • Discuss the unique needs and challenges that the rare disease community faces.
  • Become an active participant in rare disease policy advocacy efforts before your state lawmakers.

Discover Your Role Today! 

Please email [email protected] to request the link for the Vermont Rare Disease Advisory Council Coalition meeting.