Amyloidosis is a great masquerader, presenting with a wide array of seemingly unconnected symptoms. This reality is likely one of the biggest reasons for Amyloidosis being mis- and under-diagnosed. Patients often go years, seeing specialist after specialist, searching for answers. Thankfully our knowledge of this disease has rapidly advanced over the last decade, and there are now multiple FDA-approved treatments. We just need to get patients diagnosed, and the sooner the better. So the push is on to educate the medical community, from current providers to future providers, and across many different specialties including PM&R. PM&R stands for Physical Medicine and Rehabilitation – a medical specialty focused on the diagnosis, treatment, and management of patients with physical impairments or disabilities. In this episode I’ll talk with one of our ASB patient educators – Dr. Steven Gross – who is a retired PM&R specialist and ATTRwt-CM patient. He’ll talk about why he joined the ASB and what ‘clues’ PM&R providers can watch for to suspect Amyloidosis. For an overview of amyloidosis, please see episode 2 (for clinicians) or episode 3 (for patients).
