Coping/Self-Care

Presented in diary format, 'Beating Back AL Amyloidosis' takes the reader through the changes in Rachelle's health as Light Chain Amyloidosis gradually manifested…

The term 'amyloidosis' is a general term used for a group of diseases where an abnormal protein, called amyloid, accumulates in the tissues. The build-up of amyloid…

Every treatment can cause side effects or changes to your body and how you feel. For many reasons, people don't experience the same side effects even when given the…

My name is Jason Conway and I am a husband, father, teacher, and coach. I am 48 years old and have lived a pretty normal, healthy life. I have always been active…

I am writing to tell my story and help others. Everybody is different, but a terrible, incurable, fatal disease equalizes us all. There is wisdom and understanding…

When Manuel Rivera-Alsina, MD, first started feeling tired and short of breath, he blamed it on getting older. But when Manual, a maternal fetal medicine doctor,…

Amyloidosis is often overlooked because the signs and symptoms can mimic those of more-common diseases. Diagnosis as early as possible can help prevent further…