UPCOMING SESSIONS in ET
Wed, Apr 15, 2026
3:00 – 5:00 PM UTC
Newly Diagnosed ATTR Patients Onboarding Session Dr. Stacey Goodman Click To Register
UPCOMING SESSIONS in ET
Wed, Apr 15, 2026 · 3:00 – 5:00 PM UTC
Newly Diagnosed ATTR Patients Onboarding Session
Dr. Stacey Goodman
Click To Register
View all sessions

Feelings and Experiences

Documenting my dad's journey with AL Amyloidosis. "When oceans rise, my soul will rest in Your embrace. For I am Yours and You are mine!"
My name is Jason Conway and I am a husband, father, teacher, and coach. I am 48 years old and have lived a pretty normal, healthy life. I have always been active…
Back in 2015, I went to see my primary care manager (PCM) several times because of fatigue and feeling feverish (when I didn't have a fever). My muscles and bones…
Three years ago a dream came true. After years of trying, l was blessed to give birth to my son. Shortly after giving birth, I began to experience a series of…
ESPN's Jeremy Schaap was among those who received a text from Matt Millen on Dec. 23 that read, "It's on!" followed by a heart emoji. Millen, who had been…
When Manuel Rivera-Alsina, MD, first started feeling tired and short of breath, he blamed it on getting older. But when Manual, a maternal fetal medicine doctor,…
Millen's down around 50 pounds in the past year, chasing a cure for a disease called amyloidosis that is particularly evil. He needs debilitating chemotherapy now…