Feelings and Experiences

Documenting my dad's journey with AL Amyloidosis. "When oceans rise, my soul will rest in Your embrace. For I am Yours and You are mine!"

My name is Jason Conway and I am a husband, father, teacher, and coach. I am 48 years old and have lived a pretty normal, healthy life. I have always been active…

Back in 2015, I went to see my primary care manager (PCM) several times because of fatigue and feeling feverish (when I didn't have a fever). My muscles and bones…

Three years ago a dream came true. After years of trying, l was blessed to give birth to my son. Shortly after giving birth, I began to experience a series of…

ESPN's Jeremy Schaap was among those who received a text from Matt Millen on Dec. 23 that read, "It's on!" followed by a heart emoji. Millen, who had been…

I am writing to tell my story and help others. Everybody is different, but a terrible, incurable, fatal disease equalizes us all. There is wisdom and understanding…

When Manuel Rivera-Alsina, MD, first started feeling tired and short of breath, he blamed it on getting older. But when Manual, a maternal fetal medicine doctor,…

Millen's down around 50 pounds in the past year, chasing a cure for a disease called amyloidosis that is particularly evil. He needs debilitating chemotherapy now…