UPCOMING SESSIONS in ET
Wed, Apr 1, 2026
10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm Cath Jayasuriya Click To Register
UPCOMING SESSIONS in ET
Wed, Apr 1, 2026 · 10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath Jayasuriya
Click To Register
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First Clinical Experience with the Transthyretin Amyloidosis-Quality of Life Questionnaire (ATTR-QOL): Associations with Clinical Characteristics and Established Patient-Reported Outcomes

Abstract

Introduction

Transthyretin amyloidosis (ATTR) is a multisystemic disease impacting quality of life (QOL) through various symptoms. The Transthyretin Amyloidosis - Quality of Life Questionnaire (ATTR-QOL) was developed to assess disease-specific effects on QOL, but its associations with established patient-reported outcomes measures (PROs), clinical markers, and functional tests remain unexplored.