UPCOMING SESSIONS in ET
Wed, Apr 1, 2026
10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm Cath Jayasuriya Click To Register
UPCOMING SESSIONS in ET
Wed, Apr 1, 2026 · 10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath Jayasuriya
Click To Register
View all sessions

Raising Youth Voices

Raising Youth Voices is a global collaboration between the National Organization for Rare Disorders (NORD), EURORDIS-Rare Diseases Europe, and Rare Diseases International (RDI) that is bringing together youth and young adult voices from around the world to discuss rare disease advocacy. Tune in to the livestream on Wednesday, February 4 at 8:45am ET to watch the panel discussion live from Barcelona, Spain.