UPCOMING SESSIONS in ET
Wed, Apr 1, 2026
10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm Cath Jayasuriya Click To Register
UPCOMING SESSIONS in ET
Wed, Apr 1, 2026 · 10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath Jayasuriya
Click To Register
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Understanding Living with Amyloidosis: Insights from the ARC Annual Community Survey

Sabrina Rebello, ARC’s Senior Research Manager, presented an in-depth overview of key insights from our Annual Community Survey. This webinar focused on understanding the experiences of patients and caregivers throughout their diagnostic journey and ongoing care.

We explored common challenges faced by those impacted by amyloidosis, highlighted the areas where improvements can be made, and discussed patient preferences and perceptions in their treatment and care management. Whether you’re a healthcare professional, researcher, or advocate, this session will provide valuable perspectives to better understand how the journey to diagnosis and treatment has evolved over time and the continuing needs of the amyloidosis community.

Original Presentation Date:
May 14, 2025