Happenings

Rare Disease Day(R) takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare…

The National Organization for Rare Disorders (NORD(R)), in collaboration with the Rare Disease Diversity Coalition (RDDC), is pleased to announce the second webinar…

Join NHLBI, The Heart Truth(R), and organizations around the country throughout February and National Wear Red Day(R) on February 3rd, 2023 to bring greater…

This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical…

Join moderators Professor Per Westermark and Professor Julian Gillmore for a three-hour seminar that will provide an overview of current methods used to diagnose…

This symposium is organized as a hybrid meeting (with the focus on in-person) held from Sunday, May 26 through Thursday, May 30, 2024. Together with the ISA Board…

Outside of specialized centers, access to the appropriate typing and studies for risk stratification as well as novel therapeutic options is still suboptimal.…

Webinar AL Amyloidosis On October 26, 2021 the first ever World Amyloidosis Day will be organized by Amyloidosis Alliance and patient organisations from 18…

This year's event is dedicated to the passionate and growing community of amyloid patients, care providers, researchers and clinicians both locally and around the…

The Foundation for Peripheral Neuropathy (FPN) invites you to join us for a discussion on Hereditary Neuropathy and Genetic Testing. Brett McCray, M.D., PhD, will…