News

Harvard Medical School’s (HMS) UDN and Countway Library of Medicine are very excited to invite you to our 2026 February Rare Disease Month Programming. For the most…

A rare and potentially fatal form of heart disease known as transthyretin amyloid cardiomyopathy, or ATTR-CM, is increasingly drawing clinical attention as…

Amyloidosis occurs when abnormal, misfolded proteins deposit in different parts of the body, including the carpal tunnel in the wrist. It often builds up in the…

NEW YORK—In 2002, Don Brockman was diagnosed with amyloidosis. The following year, he and his wife launched the nonprofit Amyloidosis Foundation, and in 2007,…

The success rate of left atrial appendage closure to prevent stroke was high and the rate of complications was low in patients with cardiac amyloidosis, according…

This article is a preprint and has not been peer-reviewed [what does this mean?]. It reports new medical research that has yet to be evaluated and so should not be…

TUESDAY, Feb. 3, 2026 -- In guidelines issued by the American Society of Hematology and published online Jan. 27 in Blood Advances, recommendations are presented…

To everyone touched by transthyretin (ATTR) amyloidosis; through diagnosis, genetics, or love, come sit with me for a moment.My father's ATTR diagnosisSo, there we…

Raising Youth Voices is a global collaboration between the National Organization for Rare Disorders (NORD), EURORDIS-Rare Diseases Europe, and Rare Diseases…

Isabelle LousadaFounder & CEOAmyloidosis Research Consortium Transthyretin amyloid cardiomyopathy (ATTR-CM), including both wild-type (ATTRwt) and…