UPCOMING SESSIONS in ET
Wed, Apr 1, 2026
10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm Cath Jayasuriya Click To Register
UPCOMING SESSIONS in ET
Wed, Apr 1, 2026 · 10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath Jayasuriya
Click To Register
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Albany Rare Disease Day

Join NORD’s New York Rare Action Network (RAN) for an advocacy event in Albany at the State Capitol on Tuesday, February 24 from 9:30am to 4pm. This is your chance to meet face-to-face with legislators and advocate for the codification of our Rare Disease Advisory Council (RDAC) bill. Attendees will also help raise awareness about rare diseases through conversations with lawmakers that stop by our public display in the Legislative Office Building. We hope to see you there! Registration is required.