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Rare diseases are rarely confined to just one organ system . . . and patients often live that reality every day.
In a recent Rare Disease Advisor column, Faye Adams shares how ATTR-CM affects more than the heart, including the gastrointestinal challenges that can complicate daily life. Her perspective is an important reminder that symptoms outside the headline diagnosis can have a major impact on comfort, nutrition, and quality of life.
When we talk about whole-person care, this is what it means: seeing the full patient experience, not just the primary diagnosis.