UPCOMING SESSIONS in ET
Thu, Jun 25, 2026
5:00 – 6:00 AM Bangkok
Neurological Manifestations of Amyloidosis — Managing Amyloidosis PN Richard Wlodarski Click To Register
UPCOMING SESSIONS in ET
Thu, Jun 25, 2026 · 5:00 – 6:00 AM Bangkok
Neurological Manifestations of Amyloidosis — Managing Amyloidosis PN
Richard Wlodarski
Click To Register
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Shawn Sullivan's Post

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Almost 2 years since diagnosis with AL Amyloidosis. I have it is my heart, skin, nerves, stomach and on dialysis for my kidneys. Some symptoms of low blood pressure, throwing up all the time and dizziness have seemed to be better in the last few months. Only problem is, that now all of the sudden my muscles are so painful. It always hurt if someone touched me too hard, but this is pain now without any touch. Oncologist thinks I have developed a type of firbomyalgia.  Anyone else experience this later on in the disease?