Long Read – Sorry, I’m bad at effective summaries.
Well, for those that haven't heard, my 2026 took a turn for the unexpected in a challenging but hopeful way. In May, one more lab for one more “what if” to try and identify a solution to symptoms I have been chasing for a few years, turned into an answer. This isn’t what we were looking for, but it’s what we found. And it's good to know. AL Amyloidosis is considered an ultra rare blood disorder where rogue plasma cells in the bone marrow make abnormal light chain proteins that mis-fold, stick together, and damage organs. It was found through a GI tract biopsy.
According to the statistics, only 9.9 people in a million are diagnosed in the US each year. That’s a 0.00099% chance of being diagnosed. For all you who thought I was special, here’s your proof. 
However, it is believed that many more people have it. Most of the symptoms mirror other organ issues so patients are often passed from doc to doc for years trying to figure out what is wrong with THAT organ, not the system.