Patient Registry

Amyloidosis Patient Registry Hits 300 Participants and is Now Available to Entire Community

Amyloidosis Support Groups (ASG), the leading nonprofit volunteer organization providing support nationwide for those impacted by all types of amyloidosis, today…

Amyloidosis Support Groups (ASG) Launches new Amyloidosis Patient Registry

The Amyloidosis Patient Registry is a new resource for the entire amyloidosis community from Amyloidosis Support Groupsexternal link, opens in a new tab. By…

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Expert and Community Perspectives on Attruby®

In this special session, Dr. Barry Trachtenberg and members of the ATTR amyloidosis community came together to share medical insights and lived experiences related to Attruby™ (acoramidis). This expert-led discussion explores the clinical data, the patient perspective, and what lies ahead for those considering or currently taking Attruby.