Resources/Patient Support

Plain Language Summary
Oct 24, 2023
PLAIN LANGUAGE SUMMARY: From older to younger: intergenerational promotion of health behaviours in Portuguese families affected by familial amyloid polyneuropathy
What is this summary about?This is a plain language summary of an article originally published in European Journal of Human Genetics. Transthyretin amyloidosis (…
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Oct 21, 2023
Utah Amyloidosis Symposium Patient Support Group
When: Saturday, October 21st, 2023 9:00 am - 2:00 pm Where: Huntsman Cancer Hospital Salt Lake City, Utah In-Person and Virtual Registration Options Available…
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Oct 15, 2023
Boston – Amyloidosis Support Groups Meeting – LIVE – Sunday, October 15, 2023
When: Sunday, October 15, 2023 | 8:00am-3:00pm Where: Hale Cafe Atrium Brigham & Women's Hospital 60 Fenwood Road 1st Floor Boston, MA 02115 Guests:…
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Sep 30, 2023
North Carolina – Amyloidosis Support Groups Meeting – LIVE – Saturday, September 30, 2023
When: Saturday, September 30, 2023 | 9:00am-3:00pm Where: UNC Medical Center Sanofi Conference Room, First Floor 101 Manning Drive Chapel Hill, NC 27514 Guests:…
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Sep 09, 2023
Chicago – Amyloidosis Support Groups Meeting – LIVE – Saturday, September 9, 2023
This Meeting Is for AL Amyloidosis Only When: Saturday, September 9, 2023 | 9:00 am - 2:00 pm Registration: 8:00 am - 9:00 am Meeting: 9:00 - 2:00 pm Lunch: 12:00…
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