Upcoming Sessions
| DATE | TITLE | PRESENTER | REGISTER |
|---|---|---|---|
|
Wed, Apr 1, 2026
10:00 – 11:00 PM UTC
|
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm | Cath Jayasuriya | Click To Register |
|
Thu, Apr 2, 2026
10:00 – 11:00 PM UTC
|
You Are Not Behind. You Are in Different Territory. | Francesco Clark | Click To Register |
|
Wed, Apr 8, 2026
10:00 – 11:00 PM UTC
|
CAR-T Therapy for AL Amyloidosis: What’s New, What’s Real, and What’s Next | Heather Landau | Click To Register |
|
Thu, Apr 9, 2026
10:00 – 11:00 PM UTC
|
Rare and Remarkable: Turning Challenges into Purpose | Michele Wright | Click To Register |
Wed, Apr 1, 2026 · 10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath Jayasuriya
Click To Register
Thu, Apr 2, 2026 · 10:00 – 11:00 PM UTC
You Are Not Behind. You Are in Different Territory.
Francesco Clark
Click To Register
Wed, Apr 8, 2026 · 10:00 – 11:00 PM UTC
CAR-T Therapy for AL Amyloidosis: What’s New, What’s Real, and What’s Next
Heather Landau
Click To Register
Thu, Apr 9, 2026 · 10:00 – 11:00 PM UTC
Rare and Remarkable: Turning Challenges into Purpose
Michele Wright
Click To Register
Responsibility
When a family member has been diagnosed with hATTR amyloidosis, the range of symptoms that come with the disease may require a loved one to become a caregiver.…
hATTR amyloidosis is a genetic disorder that may affect you and others in your family. An open and honest conversation about your experience may encourage others to…
Caregiver burnout is a state of physical, emotional and mental exhaustion. It may be accompanied by a change in attitude, from positive and caring to negative and…
Here Are Some Steps You Can Take to Help Prevent Caregiver Burnout:
* Find someone you trust -- such as a friend, co-worker, or neighbor -- to talk to about your…
If you are already suffering from stress and depression, seek medical attention. Stress and depression are treatable disorders. If you want to prevent burnout,…