community advocate

Roland Straube is a founding member of Patientenverband "FAP e.V "external link, opens in a new taband has been the chairman of this self help group since the…

Fabio Almeida is the President of the Associacao Braseilera de Paramyloidose (ABPAR)external link, opens in a new tab. ABPAR promotes adequate means of treatment…

Elizabeth Pelletier Jones was a Program Coordinator at Boston University Amyloidosis Center. Currently, she is a Research Program Administrator at Beth Israel…

Michaely Rosas is President of a non-profit organization, Action for Amyloidosis, which is meant to raise awareness among patients suffering from amyloidosis. She…

My name is Anne Marie Carr and I was diagnosed with hATTR amyloidosis in September 2015 at the age of 57. My journey with this disease began in the Spring of 2010,…

Jodi Dewar is the President at Canadian Amyloidosis Support Network which is committed to improving survivability and quality of life of amyloidosis patients by…

Muriel Finkel is the President of Amyloidosis Group at Wood Dale Illinois which is a non-profit corporation, dedicated to the support of amyloidosis patients, care…

Mackenzie Boedicker is Founder, President, and Chairman of the Board for Mackenzie's Mission. She provides leadership, sets the strategic direction and oversees the…