Upcoming Sessions
| DATE | TITLE | PRESENTER | REGISTER |
|---|---|---|---|
|
Wed, Apr 1, 2026
10:00 – 11:00 PM UTC
|
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm | Cath Jayasuriya | Click To Register |
|
Thu, Apr 2, 2026
10:00 – 11:00 PM UTC
|
You Are Not Behind. You Are in Different Territory. | Francesco Clark | Click To Register |
|
Wed, Apr 8, 2026
10:00 – 11:00 PM UTC
|
CAR-T Therapy for AL Amyloidosis: What’s New, What’s Real, and What’s Next | Heather Landau | Click To Register |
|
Thu, Apr 9, 2026
10:00 – 11:00 PM UTC
|
Rare and Remarkable: Turning Challenges into Purpose | Michele Wright | Click To Register |
Wed, Apr 1, 2026 · 10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath Jayasuriya
Click To Register
Thu, Apr 2, 2026 · 10:00 – 11:00 PM UTC
You Are Not Behind. You Are in Different Territory.
Francesco Clark
Click To Register
Wed, Apr 8, 2026 · 10:00 – 11:00 PM UTC
CAR-T Therapy for AL Amyloidosis: What’s New, What’s Real, and What’s Next
Heather Landau
Click To Register
Thu, Apr 9, 2026 · 10:00 – 11:00 PM UTC
Rare and Remarkable: Turning Challenges into Purpose
Michele Wright
Click To Register
Caregiver
Mar 07, 2025
The pandemic’s ongoing toll has prompted more people to consider caring for an aging parent, partner, or spouse at home. But with someone turning 65 every eight…
Across the country, AARP is working with governors, state legislators, and community partners to take commonsense steps to support America's 40 million family…
There are times when those afflicted with amyloidosis need assistance - a caregiver. In some instances, such as a stem cell transplant (SCT), the treatment is so…
When a family member has been diagnosed with hATTR amyloidosis, the range of symptoms that come with the disease may require a loved one to become a caregiver.…
hATTR amyloidosis is a genetic disorder that may affect you and others in your family. An open and honest conversation about your experience may encourage others to…
Caregiver burnout is a state of physical, emotional and mental exhaustion. It may be accompanied by a change in attitude, from positive and caring to negative and…
Here Are Some Steps You Can Take to Help Prevent Caregiver Burnout:
* Find someone you trust -- such as a friend, co-worker, or neighbor -- to talk to about your…
If you are already suffering from stress and depression, seek medical attention. Stress and depression are treatable disorders. If you want to prevent burnout,…
Clinical trials are research studies that involve people. Understanding what they are can help you decide if a clinical trial might be an option for you. Or maybe…
Knowing where to go for information when diagnosed with Amyloidosis is key. This is a difficult disease from a diagnosis standpoint, and getting it right is…