Knowing where to go for information when diagnosed with Amyloidosis is key. This is a difficult disease from a diagnosis standpoint, and getting it right is critical so as to set forth a customized treatment plan for your unique situation. We have also learned from our own experience that being informed is critical so that you and your caregivers can become strong advocates when collaborating with the medical professionals. Being a rare disease, we have found a warm embrace from those that have traveled before us who are more than willing to offer their support and guidance. Take that on, and pay it forward to help those coming after you.
We at Mackenzie's Missionexternal link, opens in a new tab believe that creating a stronger community voice brings heightened awareness, action, answers, and solutions. Do not rely on searching the internet, as it is not a productive way to source information.
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