Patient Stories

In the realm of rare diseases like Amyloidosis, caregivers stand as pillars of strength, compassion, and support. Their unwavering dedication and selflessness often…

Having a genetic disease is one of life’s greatest calamities. I say this from my own experience, having been married for almost 27 years to someone who was…

– Family Health History Road Trip Program Aims to Inspire Conversations About Health History and Empower Families to Take Control of Their Health ––…

My hATTR story began in the mid-1960’s when my father, a healthy, strong, outdoorsy guy in his late 40’s started tripping, experiencing numbness, and having dizzy…

It has recently become well-established that there is a connection between Alzheimer’s disease pathology and gut microbiome dysbiosis. We have previously…

In the last 2 years, there have been 3 successful trials of antiamyloid antibodies in Alzheimer disease (AD): aducanemab, now controversially US Food and Drug…

PITTSBURGH — Bob DiCola noticed something was off with his hands.As a drummer, who has spent years keeping time with bands including the Pittsburgh PolkaMeisters…

One of the things I didn’t fully expect with transthyretin-mediated amyloid cardiomyopathy (ATTR-CM)—even though I probably should have—was how much it would affect…

The night before his world changed, everything seemed fine. It was 2006, and Suri Harish was celebrating his son’s birthday. There was lasagna, red wine, and the…

During American Heart Month, Carla Quisenberry is sharing her story in hopes it will help others listen to their bodies — and feel confident seeking care when…