Patient Stories

Mar 14, 2024

Caregiver’s compass: Guiding your loved one through hATTR amyloidosis

Mar 13, 2024

Alnylam Launches Hereditary ATTR (hATTR) Amyloidosis Campaign to Help Shorten Time to Diagnosis for Inherited and Rapidly Progressive Disease

Feb 29, 2024

Rare Disease Day: My hATTR Amyloidosis Story

Feb 17, 2024

Sodium oligomannate alters gut microbiota, reduces cerebral amyloidosis and reactive microglia in a sex-specific manner

Feb 13, 2024

Identifying Genetic Risk for Amyloid-Related Imaging Abnormalities

The Needs of Rare Disease Caregivers

A recent study looked at available research on the needs of caregivers who look after someone with a rare disease. The journal article identified seven areas that…

Life with AL Amyloidosis and Multiple Myeloma

I am grateful beyond measure!It was Memorial Day weekend 2023 and our annual family vacation in Myrtle Beach, SC. The perfect time to hit the beach, play in the…

Leveraging stories of cardiac amyloidosis patients of African ancestry or descent to support patient-derived data elements for efficient diagnosis and treatment

Storytelling is a powerful tool that continuously drives knowledge development and sharing about the patient experience with managing hereditary diseases and…

Alnylam Launches Hereditary ATTR (hATTR) Amyloidosis Campaign to Help Shorten Time to Diagnosis for Inherited and Rapidly Progressive Disease

Image Video file - Family Health History Road Trip…

Ann's AA Amyloidosis Story

I was diagnosed as a child with a disease called bronchiectasis. This chronic disease eventually caused my AA amyloidosis which affected my kidneys and eventually…

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