Patient Stories

Living With Autoimmune Neutropenia and AA Amyloidosis: Ramona's Story

The Story of Ramona RARE DISEASE DAY Living with Autoimmune Neutropenia and AA Amyloidosis On the occasion of RARE DISEASE DAY I'd like to share a few words about…

Living With hATTR Amyloidosis: CeCe’s Story

My hATTR Amyloidosis Story: A Diagnosis Leads to Advocacy

Lloyd Smith – Amyloidosis Patient Story

Pat Jordan – Amyloidosis Patient Story

Eric Polan’s Story

Amyloidosis Patient Credits Faith and Family for Survival

The Fight Against Amyloidosis: The Story of Fabio

“My Father's Diagnosis Solved My Own Health Puzzle”

Michael York: On 'Austin Powers,' Amyloidosis & Adjusting to Life in Rochester

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Expert and Community Perspectives on Attruby®

In this special session, Dr. Barry Trachtenberg and members of the ATTR amyloidosis community came together to share medical insights and lived experiences related to Attruby™ (acoramidis). This expert-led discussion explores the clinical data, the patient perspective, and what lies ahead for those considering or currently taking Attruby.