Patient Stories

I was diagnosed as a child with a disease called bronchiectasis. This chronic disease eventually caused my AA amyloidosis which affected my kidneys and eventually…

The Story of Ramona RARE DISEASE DAY Living with Autoimmune Neutropenia and AA Amyloidosis On the occasion of RARE DISEASE DAY I'd like to share a few words about…

For several years, CeCe was living with mysterious health challenges. After seeing numerous specialists and being misdiagnosed multiple times, CeCe finally found…

Jean Williams, 65, has been seeing the same primary care physician for years. Perhaps this familiarity afforded her the ease with which to openly discuss her care.…