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When they say I get it from my Mama, good looks and smarts yes! But they could have kept this one... Hereditary transthyretin-mediated cardiac (ATTR-CM)…

Hello FB Family! We are only a few days away from joining together as a community to receive  vital education and awareness about the hATTR disease. We are…

A patient shared his story with me about dealing with the burden of cardiac amyloidosis. The conversation was sincere and I could tell that he was worried. This led…

Hey fam,Research is how we got the treatments we have today, and it’s how we’ll find better ones tomorrow.Even if joining a clinical trial isn’t right for you, it’s…

I'm posting on here on behalf of Mum, who has AL Amy (UK). Hoping to bring some hope to those with AL, and also get some feedback! Would love to hear your…

How did you do? Whether you knew all the answers or learned something new today, that’s what awareness is all about.The more we understand hereditary ATTR…

The TRITON-CM study is exploring an investigational medication for people living with ATTR amyloidosis to see if it could lower their number of urgent heart-related…

Cardiac amyloidosis is often mistaken for other heart conditions. The head of VCU Health Pauley Heart Center’s cardiac amyloidosis clinic shares early warning signs…

Cardiac amyloidosis is a serious heart condition that can be difficult to diagnose because its symptoms, such as shortness of breath, fatigue, and swelling, often…

 Gene-silencing therapies, particularly vutrisiran and patisiran, demonstrate superior efficacy over older pharmacological interventions in improving…