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Did you know?ATTR-cardiac amyloidosis (ATTR-CM) is a progressive condition that affects the heart. Many cases go undiagnosed, leading to serious complications…

I have AL Amyloidosis  - I wrote a long post, and it's on Substack  - it’s called “A Year Like No Other” - 365 Days living with an incurable, rare illness…

#MyelomaMondayAL amyloidosis is a rare condition closely related to myeloma, in which abnormal plasma cells produce proteins that build up in organs and tissues,…

Kristen Hsu, ARC’s Executive Director of Research, shared the latest updates on ATTR (transthyretin amyloidosis) clinical trials and what these developments mean…

Navigating life with amyloidosis is a daily grind. Our newsletter brings trusted research updates, support resources, and real stories from those who understand the…

Article out of Cleveland Clinic:  CAR T-Cell Therapy Shows Promise for Woman With Amyloidosis in Early Clinical Trial“Often, patients with symptoms go through…

The treatment landscape for transthyretin amyloidosis (ATTR) is evolving rapidly, shifting from symptom management to true disease modification.Key takeaways:✅…

We're Just Getting StartedIf you're new here, welcome!Heart & Heritage Health Foundation exists to educate, advocate, and empower individuals and families…

The Amyloidosis Foundation’s Run-Walk-Bike-Roll is well underway! 💜Whether you’re running, walking, biking, or rolling, every mile helps raise awareness and support…

Hope Lives HereLiving with uncertainty doesn't mean living without hope.Because of research, new treatments, and growing awareness, families affected by hereditary…