Disease Awareness/Support

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St. Louis Support Group Meetings
St. Louis Support Group Meetings are held at Washington University in St. Louis Center for Advanced Medicine. Date and Time: This support group meets on Tuesdays…
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All About hATTR Amyloidosis: Patient Experience and Action on Testing, Treatment and Care
Join the first program in this special educational series to hear from doctors, advocates and people living with amyloidosis to learn about: * Understand that…
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Amyloidosis Support Groups (ASG) Launches new Amyloidosis Patient Registry
The Amyloidosis Patient Registry is a new resource for the entire amyloidosis community from Amyloidosis Support Groupsexternal link, opens in a new tab. By…
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oneAMYLOIDOSISvoice.com Support Group Platform Begins Empowering the Amyloidosis Community With Invaluable Info About Amyloidosis
rareLife solutions today announced that oneAMYLOIDOSISvoice.comexternal link, opens in a new tab-a free, online education community for those wishing to better…
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Deborah Boedicker, MBA
Deborah Boedicker is an active philanthropist. In addition to being a board member and treasurer for Mackenzie's Mission, she is board chair for MentorPrize; member…
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