Disease Awareness/Support

Telling your employer about your hATTR amyloidosis diagnosis is a personal choice. If you decide to tell your employer about your diagnosis, write down what you…

Elizabeth Pelletier Jones was a Program Coordinator at Boston University Amyloidosis Center. Currently, she is a Research Program Administrator at Beth Israel…

Are You Experiencing Symptoms and Suspect hATTR? If you know you have a family history of hATTR amyloidosis, make sure to compile your healthcare records to…

My name is Anne Marie Carr and I was diagnosed with hATTR amyloidosis in September 2015 at the age of 57. My journey with this disease began in the Spring of 2010,…

Jodi Dewar is the President at Canadian Amyloidosis Support Network which is committed to improving survivability and quality of life of amyloidosis patients by…

Muriel Finkel is the President of Amyloidosis Group at Wood Dale Illinois which is a non-profit corporation, dedicated to the support of amyloidosis patients, care…

Mackenzie Boedicker is Founder, President, and Chairman of the Board for Mackenzie's Mission. She provides leadership, sets the strategic direction and oversees the…

Charlotte Haffner is the first Vanderbilt patient to receive both a heart transplant and a stem cell transplant. She has certainly learned that life is all about…