Key Information
Source
Australian Amyloidosis Network
summary/abstract
My Name is Coral and my symptoms started on boxing day 2001 when I woke with swollen ankles and a pain in my chest.
A visit to A&E, admission to hospital and a kidney biopsy confirmed the diagnosis of AL amyloidosis. I was 39 years old and had until then been very active and healthy with 2 young children aged 9 and 13. We had never heard of amyloidosis but the seriousness of such a diagnosis was quickly brought home when we were informed by the doctors that " I was running out of time" and an autologous stem cell transplant was suggested to try and stop the disease. What a shock! Our lives were transformed over night from ones of happiness and dreams for the future to ones of fear, sadness and the unknown.
Abstract Source
https://aan.org.au/coral-my-17-years-living-with-al-amyloidosis/