Independent Living When You Have FAP

Finding out you have a rare genetic disease such as familial amyloid polyneuropathy (FAP) can be unsettling, especially if you live alone or planning to do so. There are steps that you can take, however, to help maintain your independence.

Becoming educated about FAP is also important because the disease is rare, and you will probably encounter doctors and other health professionals who are unfamiliar with it. Learning as much as possible about your disease will help in making informed decisions about your care.