UPCOMING SESSIONS in ET
Wed, Apr 1, 2026
10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm Cath Jayasuriya Click To Register
UPCOMING SESSIONS in ET
Wed, Apr 1, 2026 · 10:00 – 11:00 PM UTC
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath Jayasuriya
Click To Register
View all sessions

Living With AL Amyloidosis Fluid Balance – The 3 Ds

Key Information
Source
Amyloidosis Patient Information Site 
summary/abstract

Patients receiving chemotherapy for other conditions that are not AL amyloidosis are often told to "drink plenty" to avoid dehydration. But in AL amyloidosis, this well-meaning advice is inappropriate and can prove dangerous.

Many patients living with AL amyloidosis have amyloid deposits in the kidneys and/or in the heart. These two problems mean that the body is unable to cope well with excess fluids. The combination of kidneys that are unable to sufficiently clear the fluid into the urine and a heart that is too stiff to pump efficiently may be problematic. If amyloidosis affects just one of these organs, excess fluids can make matters worse.

Abstract Source
https://www.amyloidosis.org.uk/about-amyloidosis/al-amyloidosis/troubleshooting-for-patients-with-al-amyloidosis/