Trusted Resources

AL amyloidosis patients often have queries about diet and nutrition - about what types of foods are best to eat or avoid, or if there are any special diets they…

Amyloidosis refers to several different types of diseases where abnormal proteins are produced. These protein fibers can attach and deposit into organs, tissues,…

The Find a Genetic Counselor directory offers access to over 3,300 genetic counselors (US and Canada). Check with your insurance company to verify coverage of…

Amyloidosis is a group of conditions characterised by the deposition of amyloid protein in organ systems. About 18 different types of amyloid protein have been…

Here are exercises you can do to help manage the side effects from peripheral neuropathy. Hamstring Stretch * Hook a belt, sheet, or towel around your foot.…

Living with hATTR amyloidosis can cause stress and may make it hard to interact with others. It is important to remember that these are normal feelings following…

Deciding to leave your job following your hATTR amyloidosis diagnosis can be a difficult and personal decision. There is no right or wrong way to go about making…

It is important to talk to your employer about your diagnosis so that they can know how you're feeling and how it may affect your work. Your manager can only help…

Being diagnosed with hATTR amyloidosis can be overwhelming, frightening and hard to process. You may be asking yourself - where should I go from here? We have…