Community Stories

Systemic light chain (LC) amyloidosis (AL) is a disease where organs are damaged by an overload of a misfolded patient-specific antibody-derived LC, secreted by an…

This show will not be live streamed. You can submit your questions in advance by clicking the button "Notify when available." Learn about the latest in…

We conducted a retrospective population-based, matched cohort study using the National Health Insurance Research Database to estimate healthcare resource…

In this ARC TALKS webinar, ARC’s own Kristen Hsu presented the most current updates for the clinical trial landscape, with a focus on ATTR amyloidosis. Kristen will…

When Emmalyn Hudson had a history project, she wrote about and portrayed Dr. Virginia Apgar.The choice of Apgar, originator of the Apgar score that evaluates…

Alice Odeke’s world was turned upside down when she was diagnosed with cardiac amyloidosis, a rare condition which has led to heart failure. The 58-year-old from…

A 69-year-old female presented with symptomatic atrial fibrillation. Cardiac amyloidosis was suspected due to an artificial intelligence clinical tool applied to…

Amara, you penned a post for our blog in May of 2022. Can you talk about what has changed with your mom since then?I’ll be honest. I’m heartbroken. The last few…

When Sally Cox was diagnosed with light chain amyloidosis (AL) in 2019, she was shocked. Not only had she never heard of the rare disease that causes abnormal…

In the realm of rare diseases like Amyloidosis, caregivers stand as pillars of strength, compassion, and support. Their unwavering dedication and selflessness often…