Community Stories
Jan 09, 2024
BackgroundWe sought to assesses the impact of caring for children with ultra rare diseases (URDs) on family carers and to analyse the way these experiences differ…
A change in his hands sent this Pa. drummer to the doctor — and toward new treatment for amyloidosis
PITTSBURGH — Bob DiCola noticed something was off with his hands.As a drummer, who has spent years keeping time with bands including the Pittsburgh PolkaMeisters…
One of the things I didn’t fully expect with transthyretin-mediated amyloid cardiomyopathy (ATTR-CM)—even though I probably should have—was how much it would affect…
The night before his world changed, everything seemed fine. It was 2006, and Suri Harish was celebrating his son’s birthday. There was lasagna, red wine, and the…
During American Heart Month, Carla Quisenberry is sharing her story in hopes it will help others listen to their bodies — and feel confident seeking care when…
When people hear the word fatigue, they often think of being tired after a long day. Maybe you stayed up too late. Maybe you worked too hard. Maybe you just need a…
My name is Faye. I’m blessed to be the wife of the love of my life, Brad, and the proud mom of two extraordinary boys we adopted in 2013—now teenagers who keep our…
My father and I at my wedding in 2007 My father became sick with amyloidosis before our family even knew we were at risk. Like so many families …
My journey with cardiac amyloidosis started shortly after I retired as a firefighter/paramedic in spring 2018. I started with trigger fingers—one in 2018 and two…
The Christ Hospital Health Network offers the region's only clinic dedicated to the treatment of cardiac amyloidosis. Our expert multidisciplinary team provides…