Community Center

ALECT2 Amyloidosis Support is a Facebook group that was created on 14 May, 2016. Dorothy Sintas-Abeyta is the patient representative of the ALect2 Alliance. When…

Amyloidosis Gelsolin Hereditary - Facebook

Amyloidosis Gelsolin Hereditary is a Facebook group that was created on 7 November, 2017.

Amyloidosis Fibrinogen - Facebook

Amyloidosis Fibrinogen is a Facebook group that was created on 2 April, 2019. The people in this group have Fibrinogen Amyloidosis. You must answer the question to…

ApoA1 Amyloidosis - Facebook

ApoA1 Amyloidosis is a Facebook group that was created on 6 March, 2018.

AA - Secondary Amyloidosis - Facebook

Amyloidosis ATTRv (hATTR) - Hereditary - FAP - FAC - Facebook

Amyloidosis ATTRv (hATTR) - Hereditary - FAP - FAC is a Facebook group that was created on 7 September 2014.

Amyloidosis - Wild Type - ATTRwt - wtATTR - Facebook

Knowledge Is Power. Amyloidosis Is Known. We Are Hopeful

My AL Story: Danielle Morency

Grandmother Has Heart and Kidney Transplants, Overcomes Rare Protein Disorder

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Expert and Community Perspectives on Attruby®

In this special session, Dr. Barry Trachtenberg and members of the ATTR amyloidosis community came together to share medical insights and lived experiences related to Attruby™ (acoramidis). This expert-led discussion explores the clinical data, the patient perspective, and what lies ahead for those considering or currently taking Attruby.