Community Center

My hATTR story began in the mid-1960’s when my father, a healthy, strong, outdoorsy guy in his late 40’s started tripping, experiencing numbness, and having dizzy…

It has recently become well-established that there is a connection between Alzheimer’s disease pathology and gut microbiome dysbiosis. We have previously…

Target Audience and Goal StatementThis activity is intended for cardiologists, cardiothoracic surgeons and vascular surgeons, emergency medicine physicians, and…

In the last 2 years, there have been 3 successful trials of antiamyloid antibodies in Alzheimer disease (AD): aducanemab, now controversially US Food and Drug…

Cardiac amyloidosis is a great masquerader that often results in misdiagnosis of this condition. Early clinical recognition is crucial for timely therapeutic…

BackgroundWe sought to assesses the impact of caring for children with ultra rare diseases (URDs) on family carers and to analyse the way these experiences differ…

One of the things I didn’t fully expect with transthyretin-mediated amyloid cardiomyopathy (ATTR-CM)—even though I probably should have—was how much it would affect…

The night before his world changed, everything seemed fine. It was 2006, and Suri Harish was celebrating his son’s birthday. There was lasagna, red wine, and the…

During American Heart Month, Carla Quisenberry is sharing her story in hopes it will help others listen to their bodies — and feel confident seeking care when…

When people hear the word fatigue, they often think of being tired after a long day. Maybe you stayed up too late. Maybe you worked too hard. Maybe you just need a…