Community Center

My mom experienced many of the same symptoms I'm experiencing today...at almost the exact same age.The difference is that she didn't know they could be early signs…

Hello, first time posting here.  My cardiologist at Cleveland clinic is "pretty sure" I have Amyloid but we need to find out what type.  I had a swab for…

What is Attruby? Attruby is a prescription medicine used to treat adults with a disease that affects the heart muscle called cardiomyopathy of wild-type or variant…

Cardiac amyloidosis can occur in two main forms: wild-type and hereditary. New treatment options are now available for both forms, including:TTR stabilizersTTR…

Reflecting on last weekend at the Cardiac Amyloidosis: Emerging Trends and Future Directions Conference in Atlanta. It was encouraging to see healthcare…

Join Fred Hutch Cancer Center and the Amyloidosis Support Group for a free educational event designed for patients and caregivers affected by AL (light chain) or…

My husband was diagnosed with WT ATTR and stayed on Attruby.  Initially,  for the first 4 weeks he felt good,  but now he is having autonomic nervous…

For many people, amyloid light chain (AL) amyloidosis is not accurately diagnosed until the later stages of the disease, when prognosis is poor. Education around…

Long-term efficacy and safety of vutrisiran in hereditary transthyretin amyloidosis with polyneuropathy: final analysis of the HELIOS-A randomized treatment…