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My husband was dx with wt attr cardiac amyloidosis in January and had his first shot of amvuttra soon afterward. It all started with afib w/bradycardia many years…

My husband (76) was diagnosed with cardiac amyloidosis one year ago and is taking Vyndamax. He has his one year echo next week and has had no side effects from…

Cardiac amyloidosis occurs when an abnormal protein called amyloid builds up in the heart. As a result, the heart becomes thick, and doesn't fill or pump well.

Caregiving for a person with ATTR-CM can be a rewarding and fulfilling experience. It can also be emotional, stressful, and challenging. Here are a few things to…

My amyloid condition has seriously affected my heart's function. So I am in the hospital now, in the middle of my fifth month.I am at the University of Washington…

Switching cardiologists or amyloidosis specialists can feel daunting, but sometimes it’s the next right step when you’re living with ATTR-CM and not feeling heard,…

Early recognition can make a difference. ATTR-CM (a type of amyloidosis) can affect the heart — especially in older adults and some Black families. Awareness saves…

Excellent article on the latest guidelines for diagnosing AL amyloidosis!Key Insights on New ASH Guidelines for AL Amyloidosis, With Joselle Cook, MD

It all started in the spring of 2002, my awareness that is. We had left our home of 15 years in Seattle to settle for the next 20 years in Syracuse, NY. We were…