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Diagnosed with ATTR cardio wild type amyloidosis few months ago. No cardiac sysmptoms. Just had hip replacement and dis red Congo stain and came back with…

This Thursday, Angelini Pharma has agreed to buy Catalyst Pharma for up to $4.1 billion, its first acquisition since 2021, which would mark its entry into the US…

My husband was diagnosed last August with wild type ATTR amyloidosis in his heart. So we are in learning mode. He is on Attrudy. Last night we went to ER. He is…

Asking the right questions before starting amyloidosis treatment can feel overwhelming, from understanding how it works to navigating insurance coverage, but it…

TOMORROW'S SESSION Emerging Roles of TTR in ATTR-CM and Your Overall HealthWednesday, May 6 6:00 PM – 7:00 PM America/New_YorkWhat is transthyretin (TTR) and…

Cardiac Amyloidosis Can Cause a ‘Stiff Heart’—10 Symptoms To Know See link below More here bit.ly/3PmtzhV 

New findings show that Wainua may offer similar benefits for both men and women living with hATTR-PN.In an exploratory analysis from the NEURO-TTRansform trial,…

AI can now screen for a deadly, underdiagnosed condition using data you already have. ATTR-CM (transthyretin cardiac amyloidosis) is massively underdiagnosed…

I have wt attr-cm.   I have heard that Amyloidosis is rare....I am the fourth person I know with this disease . Including myself two with AL, two with wt Attr-…

Rare diseases are rarely confined to just one organ system . . . and patients often live that reality every day.In a recent Rare Disease Advisor column, Faye Adams…